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Wednesday, 11 November 2009

  • So ACTUALLY

    I've had this sinus infection for so long, that I got used to it and didn't even know it was there... possibly for about 20 years. 

    Chronic infections can cause hives.

    The REASON I probably have had this sinus infection for so long is because I have an immunodeficiency and my body is not capable of fighting it off on it's own. 

    What this means is, when I'm sick, I go to the doctor.  No more trying to make it better myself with rest and chicken noodle soup. 

    We haven't diagnosed the immunodeficiency, but the chances of me having this are super high.  Doctor's going to wait another month to make sure that my low igG levels aren't a result of the prednisone and my body trying to bounce back from that still.  However, it's still so low he thinks this was pre-existing.  So then, he's going to shoot me up with a pneumonia vaccine and if my body responds by making antibodies, then I don't have an immunodeficiency, and if it doesn't, well then diagnoses made.  But he has to wait a month AFTER he gives me the pneumonia vaccine before he can even measure that.

    This won't be done for awhile. 

    Oh, and now I have to also go to a nose, mouth and ear specialist.  Praying they don't find MORE stuff going on.  Ugh.  Really.  I was so afraid of this.  You have one medical problem, they run a bunch of tests and find out you have a bunch of medical problems and then it turns into this huge mass of doctors visits.

Tuesday, 10 November 2009

  • When you go for 24 years thinking this is normal

    and find out... hey, having a body temperature of 96.7 is, in fact, NOT normal, and you wonder, hey, why were no doctors concerned about that?  And the few who even took note of it, simply said, oh, don't worry, it just means your body temperature is below everyone elses.

    Except... 96.7 degrees for body temperature is well through it's way in mild hypothermia and about 2 degrees off from moderate hypothermia. 

    And all my life, I'm told it's not something to worry about, until now, suddenly, I'm being told I should get that checked out.... so... I go online.

    What do I find out but that having a messed up body temperature actually can cause ALOT  of problems in your body.  A few being depression, anxiety, fatigue, feeling sluggish, HYPOTHYROIDISM.  (Interesting, everything keeps pointing back to my thyroid.  Apparently, that little bugger controls a lot about you feeling good.)  This is also interesting because... I've had ALL of those symptoms (save for the hypothyroidism... we're working on that one) and another interesting thing is, it is entirely possible to reset your body temperature with thyroid medication.  Like... I could possibly know what it feels like to be normal.  I've never known.  It could be interesting.  I've always known 98.6 degrees to be a fever.

    Needless to say, I've been monitoring my body temperature for the last week (mind you, feeling as healthy as I can be... for me... anyway.  As it turns out, I'm not the healthiest being on the planet.  Who knew.)  Just to, you know, make SURE that my body temperature is normally at 96.7.  Which it is, and has been for as long as I remember but you know, I like to double check things.  I'm going to be bringing this up to my doctor.  I'm hoping this little bit of information is either helpful to him, or something that defines or cements what he's already thinking I have... which, just based on his description and guesses at this point... kiiiiinda sounds like me.

    Sooo glad I have this appointment tomorrow.  I'm hoping for some answers.  But will likely end up with more questions, at the rate we're moving at right now. 

    But, we're moving forward, that's the important thing.

    Plus, the health reform passed congress (the house? I don't remember which, and my internet's been down and no cable so... no news...not really I get it by word of mouth).  Woot!  I know, it still has a ways to go.  And even if it does pass further, it's going to be years.  But still.  There's hope for me after all.

Saturday, 07 November 2009

  • I feel a little like I'm at church

    This weekend, two very devout Christian groups are using our facilities to do some soul searching.  My group, a group of 6 adults pray a lot and I can't believe how much it's made me actually uncomfortable.  I took them out on the ropes course, and they were praying constantly while up there.  And I suddenly feel like an outsider to this prayer thing. 

    Today, I overheard them talking about spiritual experiences they've had and I've become increasingly more aware of how I would probably not have seen a lot of those experiences as spiritual.  And yet, to them, it is completely unquestionable.

    I don't know.  I mean, yes, I have prayed once or twice for other people in the last couple of months.  And sometimes, I felt like it was because I felt helpless and too far away to help and that was the only thing I could to do to feel like I unloaded something.  Was I just throwing my requests to the air?  Or was it actually taken off my shoulders a little by someone else? 

    The other group here, a group of highschoolers, is a very fundamentalist group.  And Jess overheard some of their talks about how they believe everything in the bible and that the Earth is only 6,000 years old and Charles Darwin was a Christian and Evolution doesn't exist.

    I'm kind of glad I didn't overhear that.  In all honesty, it makes me really sad, these young people, who still have impressionable minds, are being indoctrinated into this stuff.  I mean, literally, that is why they are here, on this retreat, as a confirmation in their faith.  

    I think if I had heard that conversation, I would have gotten angry.  And that would be so unprofessional. 

    Of course, I guess it's not really news to anyone here that fundamentalism bothers me.  No, I am not bothered by religious people, and while it does make me uncomfortable, I'm not bothered by people who pray. 

    Even if prayer is going to the wind, it's also a reflection and a reminder to oneself of what to be thankful for in our lives.   And if it's at least letting someone's stress lift a little, I don't find it bad.  We don't need unnecessary stress.  Even if prayer is just a release of emotion or thankfulness.

    Who knows.  I've been feeling down lately.  Not so much about life.  But family matters.  For some reason, when I try to sleep at night, my mind goes back to graduation and that fight I had with my family.  And I cry about it.  Because it was so hurtful.  And from there, I start thinking about growing up in my family, and how my family has become so split.  And it breaks my heart.  I see other people's families do these little things for each other... and it's like... I never got stuff like that. 

    Little emails that parents send to their kids while they are staying here.  Mail other naturalists get even though their parents live all the way in New York or Maryland.   Other naturalist's parents who are actually interested in visiting their son or daughter here, even though they live in New York, or have to drive 12 hours from Michigan.

    And yet, never once has my family ever been interested in visiting me.  My mom has before.  But my dad?  My brother?  I mean, they helped me move down, dropped my stuff off and left.  And I would have loved to have showed them around. 

    I guess my expectations are high.  But those are the things that matter more to me. 

    Maybe my feeling down about family is making me feel bothered by these religious groups here.  I don't know.  I don't even know if it's even related.  It probably is.  I definitely feel as though I've let my mom down, falling into this non religious whatever I am in.    Simply appreciating things for what they are.  I've actually had nightmares of my mom getting all religious crazy on me and killing my friends for being terrible influences on me and locking me up and exorcising me.  And my mom is not crazy like that.  They're terrifying dreams though. 

    My God is broken. 

Sunday, 01 November 2009

  • Yep I'm alive

    I realize that my posts have become extremely scarce, and judging by the past couple of posts I've made, you probably think I'm in a rather dark place right now.

    And that's really not the case.  I've noticed this in the past, but I tend to feel like I need to blog more to release frustrations and fears.  The and that makes my posts biased in the negative direction, which is simply not true. 

    Yes, the health stuff is on my mind once in awhile, and sometimes, for a few hours, it's the only thing I can dwell on, and then I'll probably blog about it, but the truth is, I'm really not thinking about it all that much.  I'm mostly just going on with life as it is, seeing as, as far as I know, I feel just fine.  

    In my case, no news is usually good news.  It just means I'm busy.  And busy I am.  Work is going great.  I've truely met some great kids.  I especially feel close to a group if I teach them for more than one class a week or if I'm a liason for a small group.  In fact, most of the time, I get a little bit attached to them, and find that I'm a bit sad to see them go. 

    Granted, once in awhile, and it's usually the GIANT schools from the rich parts of the cities, I can't WAIT for them to leave.   And usually, it's not the kids, it's the adults I'm ready to kick out. 

    But for the most part, I'm still really loving my job.  I'm getting more compliments from parents and teachers that I'm really good at what I do.  I still get the negative review once in awhile that bring me down sometimes.  And I know I'm not perfect, but I want my boss to see those more positive reviews show up on paper.  And I want to see them too.  I hate when I get one in my mail box and open it up and it's negative negative negative.  Thanks.  Can't wait for the positive positive positives.  Someday.

    My mom is going to come with me to my next mayo appointment.  I'm glad.  It's a bit scarier than the past mayo visits.  CT scans and xrays.  I've never had to do stuff like that, so it freaks me out.  I know my doctor told me that it was rare stuff they were dealing with.  Yet the things he was telling me, when I looked up on the internet, seemed common.  I know that my searches are rather vague because I honestly could not understand what my doctor was really talking about.  It was so complex.  And I can tell he is not too good at dumbing it down to the non-doctor.  Anyway, I'm glad my mom is coming.  Not only that, I miss her.  So it will just be good to see her. 

    I feel like I've really connected with one of the other naturalists here too, which is really nice.  The only other real introvert of the group.  And she reminds me of one of my past roommates who was the best roommate ever and one of my very best friends.   It's really nice to talk to someone who understands the way that social situations can be exhausting.  No one else seems to understand how liasoning exhausts me more than teaching.  It's the whole being on duty 24 hours a day and even while the kids are in class, you're still working, and have to be alert.  And when they get back from class, I've felt that it is rude for me not to be with my group when they're around.  The kids get attached and want me to join them in their activities.  It would be sad if I didn't, you know?

    Needless to say, it's exhausting for me.  And teaching is a welcome break. 

    Anyway, I miss you guys.  I wish I had more time to keep up with my subs.  I feel like I'm losing touch with some really cool people I've met here on xanga and that makes me sad. 

Wednesday, 21 October 2009

  • :/

    Yeah...so... blood test results....

    Are not good.  You know how the disease that I had was like really rare, like 1% of the population?

    Yeah, we've dropped that number to like... 0.0001%

    Things are not looking so hot.  Needless to say, I have to go back to Mayo and have more tests done. 

    So if there's anyone out there who's savy with the medical terms... my doctor was throwing around the words "low gamaglobin levels"  and immulinglobin having four different levels: g, a, m, and e.  And that the g level, which he thought was a result from me being on predinizone was extremely abnormal  And that my a level was completely absent.  He was also throwing around the possibility of "common variable immunodeficiency." 

    I don't know what that means.  I really don't, except that it's not good.  I could tell he was afraid to throw out the word autoimmune, mainly in a way that seemed like he didn't want to be delivering bad news.  I wish he knew that I'm not afraid to hear the word autoimmune and that with the history in my family that I'm pretty much expecting it. 

    Anyway.  He basically told me I should be worried, but not to worry. 

    I can take it, doctor, you can be straight forward with me. 

    So now... I wait.  More tests.  Something with my sinuses and chest xrays... I don't know.  I trust he knows what he's doing because this stuff is so way over my head...

  • Visit x_Butterflies_and_Hurricanes_x's Xanga Site
    • Name: x_Butterflies_and_Hurrica
    • Gender: Female
    • Member Since: 1/21/2009

About Me

  • I am a 23 year old female. I have a boyfriend of nearly one year and going strong. I am currently a college student studying Environmental Geoscience. I'll be graduating in May and will hopefully finding a job with USGS eventually. I'm passionate about the environment, geology, music and evolving my religious beliefs. I play piano and violin and I love to read.

Favorites

Posts I'm particularly proud of (so far)

evolution, straight up
In dreams

Looking for a Good read? Some of the best

Elgaberino: "stop,start"
zerowing21: "Because I love controversy"
JadedJanissary: "Me"
Power_Ranter_Freak:"Hate Mail"
acrushonmimic: "The power of a single act"
Paul_Partisan: My reply to some Christians"

My Favorite Bloggers

anth0nyc
Really cool pictures
I_Am_Serious_Cat
Because it's LOLcats and... I love LOLcats
DearRicky
The world's most romantic guy. What's not to love?
AibellFaeire
One of the sweetest people I've met on Xanga so far.
Da__Vinci
Interesting reads. Somewhat controversial but always interesting.
Old Hat
Warm fuzzy feelings. :)
JadedJanissary
Does not disappoint. Always a thought provoking and inspirational post. Always. Zerowing21
LOLcats references and deep, well thought out posts. You can't go wrong.

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Chatboard (12)

  • ashoktanwar
    Hi Pl b my frnd.
  • bitterbittenrockinblonde22
    @x_Butterflies_and_Hurricanes_x - LOL, yeah, there's a girl here with the s/n "butterflyknives", so I mixed her and you up. She's the one who bashed me
  • x_Butterflies_and_Hurricanes_x
    @bitterbittenrockinblonde22 - LOL no prob. I was going to say.. uh I haven't even commented on the animal cruelty post.
  • bitterbittenrockinblonde22
    OMG! Wrong person! I'm so sorry! Be my friend?
  • bitterbittenrockinblonde22
    You again!.....I think you bashed me on Olyachka's post about animal cruelty this time.
  • ZUBER_CHAUHAN
    I LIKE UR PICTURE.NICE TO MEET YOU
  • vexations
    I have a butterfly photo for you....
  • x_Butterflies_and_Hurricanes_x
    @I_Am_Serious_Cat - if you want my AIDZ I will gladly lick your face. Then I will be free of such a disease.
  • I_Am_Serious_Cat
    PUNY H00MAN! You will one day LICK MY FACE.
  • Peridot21
    That song, Sugar Rush, is by Cash Cash...techno-electronica-alternative ha...they're like 4 or 5 scene boyz lol...you should go look at their myspace page...it's deff a scene, so purtyyyy =)

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